What a ride this has been. Last Friday the doctors asked if we could get to the hospital in DC from Atlanta THAT day. That day is a lot to ask, but Travis made it happen and I followed close behind.
As the days went on we learned about blood clots, fluid around the heart and infection of the incision. We then learned that Travis’s body would not be ready to start the Mage trial as planned so they switched him over to the TIL trial. They said that we could start it in a few weeks, IF all of the ailments listed above look okay.
So we adjusted mentally to the TIL and were ready for them to give us the news about when we should return for the trial. The doctors came in and you know what we heard.
Your cells are contaminated. All of them.
The surgery that Travis is recovering from was a waste.
Then the news that Travis was probably a carrier of the contamination? A rare fungus. WHAT???!!!
This news came on Tuesday. Now it is Friday. Results are in.
Travis Does Not Have Aspergillosis.
The tests came back with no growth. Nothing. No bacteria. No virus. Most importantly… NO FUNGUS!!!
The team of doctors and nurses around here are so excited. Of course, they have fallen in love with Travis. The nurses told us that everyone deflated on Tuesday when the Aspergillosis news hit the floor. So as you can imagine, the news that Travis is clear of fungus has spread. We have had quite a few excited visitors come to the room just to give Trav a high five.
So what does this mean? Unfortunately, the T Cell trial is off the table for now. I will share that the lab had saved a section of the tumors in the freezer. They are still frozen. Our doctor has told us to assume that they will be contaminated as well since all of the other samples were spoiled.
The next thought is to go for the Mage trial. This is the trial that is done by using white blood cells from a huge blood draw.
Travis was actually supposed to start Mage yesterday. The Mage trial is new and the government regulations state that there is to be a two week space between each participant in the trial. The slot that Travis was supposed to have this week is now just an empty slot. The next slot is taken. That means that Travis will not be able to start Mage for about 5-6 weeks. The perks are that his incision will have time to heal and he will have more time on blood thinners. Also, this is a dosage trial so if Travis is forced to wait through one other participant he will get a higher dosage of cells which could be a good thing.
The negative is 5-6 more weeks without treatment.
What a ride. Ups Downs Tosses and Turns. We have ridden this ride like it is our job and well it pretty much has been.
No matter what… Our faith has not been shaken. Our faith is NOT contingent upon our experiences, no matter how ugly.
We do not know the plan and we can not try to guess. But this we know, we experience God on a daily basis. When we were talking today we both said that we would not trade our lives in for anything. We never wonder where God is in all of this because we constantly experience the peace that ONLY comes from God above.
So no matter what our situation is… even through tears and heart ache as it was on Tuesday, we will thank God for giving us THIS day.
Giving us this RIDE!